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Has your new partner just informed you that he or she has herpes?

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I'm sure my boyfriend doesn't have herpes, a patient recently told Dr. Lydia Shrier, an adolescent medicine specialist at Children's Hospital Boston.

My age: I'm just over sixty

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And I have herpes.

The encounter

I have sat with patients after a herpes diagnosis, giving them the pep talk I would end up wishing I had received. I did not, however, anticipate how much stigma I would experience when I was diagnosed. It started with the diagnosing provider, who seemed to suggest that I should have known better, that I should have been more responsible given my profession. This did nothing to lessen the internalized shame I felt.

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I labeled myself a professional failure. My doctor was right, I should have known better.

How to learn, and talk, about genital herpes

And like one-in-five sexually active people, I contracted genital herpes. At the time of my diagnosis, my doctor did not take a sexual history, and we did not discuss how I might have acquired the virus or how I could prevent transmitting it to any future partners.

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There was no counseling on how to disclose my diagnosis or advice on dating after herpes. There was no concern for my mental health, or how I was digesting this news that so many find devastating.

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And, as the provider hurriedly left the exam room, I was left to navigate this new and unexpected reality alone. My experience with stigma continued as I made a point to inform partners of my diagnosis.

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One person nervously insisted he tested negative for the HSV-2 antibody and promised to send me his testing history. Yet another completely cut all ties with me, our friendship instantly evaporating upon disclosure. I took myself out of the dating game for months after my first outbreak cleared. Despite all of my knowledge, I was not immune to the societal messages of shame.

I believed no one would ever be attracted to or love me again.

Three burning questions – amanda dennison, ncsd

I felt dirty. I was the punchline of every herpes joke on TV, in the movies, and among some of my social groups. With the support of a few select friends and family, I was able to overcome some of that initial shame and self-inflicted stigma.

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When I decided to date again, I made a point to tell any possible date either before our first date or on our first date. Even after clumsily disclosing to my partners months earlier, I initially felt unequipped to handle the conversation with potential dates.

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My first post-diagnosis date came along and I cautiously told him via text that I had herpes. I felt like I was telling some big, bad secret, but he swore he was fine with it and we moved along in our conversation. As our first and soon-to-be last date progressed, the topic came up as he asked some basic STD prevention questions, which I happily answered. But then he asked, in all seriousness, if he could get herpes by our legs touching under the table. Weird, I know.

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But, I was the one with the virus and I was the one with the knowledge. I used that to take back the power in this situation. I would offer to answer questions, but refused to allow anyone to shame me or make me feel less than because I have herpes.

Dealing with rejection

In the years that followed, I got so bold as to include my status in my online dating profile. There is a disproportionate amount of stigma around herpes and other STDs. I think this is true for all STDs.

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NCSD provided a safe and supportive environment for me to talk openly about my herpes, and we want to provide the same thing for others. That is why we are working to give a voice to the community of individuals affected by all STDs.

This work both inspires and empowers me, which is why I have chosen to use my voice and share my story.

Broaching the topic of genital herpes

Amanda le the programmatic work at NCSD. There she spearheaded program integration efforts and conducted strategic planning and program evaluation. Prior to her work at the state level, Amanda managed various programs and projects at an FQHC, focusing on the implementation of programs that addressed health equity and social determinants of health.

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Want to be a part of tackling the stigma around STDs? Do you have a story to share?

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Please reach out to Iman Karnabisenior manager, communications, with any requests or questions. Read this next: Blog.

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